Teagyn Summer 2003

2 1/2 yrs old

TEAGYN

10-13-00    1-8-05

D  BI FUNCTIONAL PROTEIN DEFICIENCY

Teagyn summer 2003

2 1/2 yrs old

 

MY MUMMY IS A SURVIVOR

My Mummy is a survivor, or so I've heard it said.
But I hear her crying at night when all others are in bed.
I watch her lay awake at night and go to hold her hand.
She doesn't know I'm with her to help her understand.

But like the sands on the beach that never wash away...
I watch over my surviving mummy, who thinks of me each day.
She wears a smile for others...a smile of disguise.
But through Heaven's door I see tears flowing from her eyes.

My mummy tries to cope with death to keep my memory alive.
But anyone who knows her knows it is her way to survive.
As I watch over my surviving mum...through Heaven's open door.
I try to tell her that angels protect me forever more.

But I know that doesn't help her or ease the burden she bears.
So if you get a chance, go visit her...And show her that you care.
For no matter what she says...no matter what she feels.
My surviving mom has a broken heart that time won't ever heal~!

This poem was written by Kaye Des'Ormeaux

 

 

My sweet, sweet Angel

 

I don't even know what to say to you except that I love you, I will always love you and I will always miss you. The day that you came in to my life Teagyn my life changed forever, I was so you and nieve and had no idea how to be a mother, never mind the mother of a special needs child. You have changed me Teagyn, you have changed everyone that knew you and for that princess we will be forever grateful.

 

 I will never ever be able to thank you for everything that you taught me. you taught us all to cherish life, to marvel and the small accomplishments. you thought us to be thankful for what we had and not dwell on the things that we didn't. we had you Teagyn and we had love, and that was all that we needed, you taught us all the ultimate gift and that is that love is unconditional and unselfish. I never got to hear you say I love you mummy, I never got an intentional hug or kiss, but all I had to do was look and you an I knew that you felt my love, I knew that you loved me,

 

When I got your diagnosis in March of 04, I was shocked and stunned, the DR's where shocked and stunned, children with this illness do not normally live as long as you have, they do not normally accomplish the things that you did. that just reassured me again that my baby truly was an angel.  I remember that day so well, hearing those words ring over and over again in my ears. I vowed that day that I would do everything to help you and I hope I did Teagyn, When the DR told me you couldn't hear, I cried there was no way, I used to sing to you and it soothed you when I sang, you stopped crying with the sound of my voice, I knew you could hear me.  Despite all that you had gone thorough, many illness, seizures you kept on going, I remember a day at a neurology appointment when the DR said he was so amazed by you, he was amazed that you where still here, he was amazed that you found the strength to keep on going, and you did keep on going, you lived another 6 months after that.

 

I never thought that I would have to wake up and face a day without you. Not once, it never crossed my mind, I thought that if I prayed hard enough we would get our miracle, I wanted our miracle. I often dreamed of you running, laughing, playing, talking being like any other 4 yr old and I hope now you are. I hope now that you are in heaven with grandpa you are able to do all of those things and more. I guess when you think about it I did get my miracle, just not in the way I wanted it, I wanted it here on earth. I wanted to be able to see you take your first steps. I only hope and pray that you stay the sweet little girl I always remember until the day that we are able to meet again, then I to will be able to rejoice in all of your accomplishments.

 

I am forever grateful that you choose me to be your mummy, I have changed in so many ways. I hope I can find the strength to continue on with my life and honor your memory. I want you to be as proud of me as I am of you.

 

I love you baby girl

now always and forever

love always mummy xx

GOOD NIGHT BABY. WE LOVE YOU XXXXX